Répertoire de ressources

• Page web | Français et Anglais

  Cadre d'évaluation de l'engagement patient

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2023. Le Cadre d’évaluation de l’engagement des patients et du public (EPP) en recherche, Apprendre Ensemble, est un outil national adaptable, qui peut être utilisé pour planifier et pour évaluer le processus d’engagement avant, pendant et à la fin d’un projet.

• Page web | Anglais

  Supporting Equity-centered Engagement

  McMaster Faculty of Health Science. A guide to help navigate the many helpful resources that exist to help centre equity in engagement work.

• Document | Anglais

  Patients as Partners in Research-Planning Guide

  Patients Canada (supported by OSSU), 2016. Guidelines for patient/caregiver partners on a research team.

• Document | Anglais

  CIHR Patient Engagement Framework

  SPOR/SRAP, 2014. The SPOR Patient Engagement Framework is designed to establish key concepts, principles and areas for patient engagement to be adopted by all SPOR partners.

• Document | Anglais

  Guidance on Being a Patient and Public Partner in Research

  SPOR Evidence Alliance. A tool designed to provide guidance to patient and public partners on how to engage in health research in a meaningful and collaborative way.

• Infographie | Français

  Infographie sur la participation des patients

  Diabetes Action Canada. Un outil pour comprendre comment les patients partenaires sont impliqués dans la recherche.

• Vidéos | Anglais

  Mobilizing Indigenous Engagement and Cultural Competency

  Can-SOLVE CKD, 2022. A webinar on mobilizing Indigenous engagement and cultural competency, meeting the Indigenous Initiatives team, and understanding the fundamentals of respectful engagement with Indigenous peoples.

• Guide | Anglais

  Ensuring the Ethical Conduct of Patient-Oriented Research: A Guide for Researchers

  BC SPOR Support Unit, 2018. To provide researchers, trainees, and post-doctoral fellows with an overview of the current areas of ethical consideration discussed in the research literature on ethical engagement in POR.

• Page web | Français et Anglais

  eSRAP - Plateforme de veille informationnelle sur la RAP

  Unité de soutien SSA Québec, 2018. eSRAP est une plateforme de veille collaborative conçue pour aider des communautés intéressées par un sujet (incluant des chercheurs, cliniciens, décideurs et patients partenaires) à se maintenir à jour sur les dernières publications scientifiques sur ce sujet. eSRAP facilite la sélection des publications pertinentes et l’accès aux publications sélectionnées. eSRAP vise à optimiser le partage des efforts de veille et celui des connaissances, et ultimement à démocratiser les veilles.

• Balado | Anglais

  Matters of Engagement - A series of podcast on patient engagement

  OSSU - Ontario SPOR support Unit, 2022. A series of podcasts on patient engagement and how people in Canada access and experience health care service delivery and distribution; how those experiences impact both individual and community health; and the multitude of environmental, systemic, and political factors that favour some and disadvantage many.

• Guide | Anglais

  Patient Engagement Readiness Checklist

  MSSU - Maritime SPOR Support Unit. A guide to help determine if you are ready to engage patients as partners.

• Vidéos | Anglais

  Patient EngagEment in Research (PEER) Webinar Series

  Chronic Pain Network, 2021. A webinar series concerning patient engagement in research.

• Document | Anglais

  Engagement Rubric for Applicants

  PCORI, 2016. The Engagement Rubric illustrates how input from patient and stakeholder partners can be incorporated throughout the entire research process.

• Page web | Anglais

  Engagement in Health Research Literature Explorer

  PCORI. A searchable list of publications on engagement in health research sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results.

• Page web | Anglais

  Engagement Tool and Resource Repository for Patient-Centered Outcomes Research

  PCORI. A searchable peer-to-peer repository including resources that can inform future work in PCOR.

• Document | Anglais

  Engagement Plan

  PCORI, 2021. An Engagement Plan that outlines how stakeholder partners will be involved in all phases of the study.

• Document | Anglais

  Budgeting for Engagement Activities

  PCORI, 2020. To help applicants incorporate engagement into their study proposal and budget, this document presents guidance to help researchers identify budgetary items associated with engagement within a research study.

• Document | Anglais

  Compensation Framework

  PCORI, 2015. PCORI’s Compensation Framework provides guidance for establishing fair compensation levels for patients, caregivers, and organizations.

• Document | Anglais

  Guide for Engaging with Research Partners about Data Analysis

  PCORI. A guide to prepare research staff to involve research partners in analyzing and interpreting quantitative data.

• Page web | Anglais

  Research Fundamentals: Preparing You to Successfully Contribute to Research

  PCORI. A collection of tools offering different ways to learn about the health research process and be involved in patient-centered outcomes research.

• Page web | Anglais

  Building Effective Multi-Stakeholder Research Teams

  PCORI. A webpage which provides information and resources to help you succeed in conducting research in multi-stakeholder teams.

• Page web | Anglais

  Patient Engagement Toolkit

  Kaiser Permanente and PCORI. The Patient Engagement Toolkit offers materials to support researchers who want to engage with patients in conducting research. 

• Page web | Anglais

  Beyond Sex and Gender: Making Research More Participatory for Vulnerable Populations

  Women's College Research Institute. A module examining strategies to strengthen collaborative research with vulnerable, marginalized or socially excluded communities.

• Document | Anglais

  Feuille de route pour le partenariat avec les usagers et leurs proches dans un système de santé apprenant

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2022. Cet outil a pour objectif d’expliciter les rôles des usagères, des usagers et de leurs proches dans un SSA et de décrire comment ces personnes peuvent, individuellement et collectivement, contribuer à ses multiples dimensions.

• Page web | Anglais

  Public and Patient Engagement Evaluation Tool

  McMaster Faculty of Health Science. The Public and Patient Engagement Evaluation Tool (PPEET) is a series of three questionnaires to evaluate public and patient engagement.

• Document | Anglais

  Supporting High Quality Patient, Family and Caregiver Engagement: Principles and Practice

  McMaster Faculty of Health Science, 2021. Slides of a workshop concerning principles, values, and enablers of high quality patient, family, and caregiver engagement, approaches to implimenting purposeful engagement in practice, as well as challenges, barriers, and solutions to effective patient, family, and caregiver engagement.

• Page web | Français

  Soutien à l’engagement axé sur l’équité

  McMaster Faculty of Health Science. Un guide qui vise à vous aider à naviguer sur les diverses ressources utiles qui existent afin que vous puissiez mettre l’équité au centre de votre travail d’engagement.

• Page web | Anglais

  Engage with Impact Toolkit

  McMaster Faculty of Health Science. The Engage with Impact Toolkit was designed to help organizations evaluate the impact of their patient, family and caregiver engagement programs and activities.

• Document | Anglais

  Engaging and partnering with older adults in health research: The why and the how

  McMaster Faculty of Health Science, 2021. Slides concerning the rationale for engaging community partners in health research, who to engage, how, when and in what, as well as how to embed high-quality engagement practices into your research.

• Vidéos | Anglais

  Supporting your Engagement Work through Evaluation

  McMaster Faculty of Health Science, 2023. A webinar to introduce participants to the growing number of engagement evaluation tools, discuss the importance of choosing the right tools for your purpose and stage of engagement activity, work through case examples of how to implement different evaluation tools in different contexts, and reflect on the current state of public and patient engagement evaluation.

• Document | Anglais

  Workbook to guide the development of a Patient Engagement In Research (PEIR) Plan

  University of British Columbia, 2018. A workbook to facilitate high-quality partnerships between researchers and patient partners undertaking research projects together by presenting guidance for research project teams to plan their activities.

• Page web | Anglais

  Patient Engagement Toolbox

  University of Toronto. A list of resources and guides to answer common questions about patient engagement.

• Vidéos | Anglais

  Integrating the Patient Voice in Health Research: The What, Why and How

  AllerGen NCE, 2017. This webinar discusses what patient engagement is (and isn’t), why it’s important and how BC’s Strategy for Patient-Oriented Research (SPOR) SUPPORT Unit is working to “get it right.”

• Page web | Anglais

  Resources for Patients, Families and Caregivers

  Health Quality Ontario. A collection of resources that offer a variety of ways ome can play an active role partnering effectively with health providers and organizations – including understanding the power of patient partnering, learning how to become an advisor, and ways to effectively share one's story.

• Page web | Anglais

  Resources for Health Care Providers

  Health Quality Ontario, A number of resources and tools to help integrate patient partnering into your professional domain.

• Document | Anglais

  A Guide for Health Care Organizations

  Health Quality Ontario. A list of methods to guide when and how to engage patients and caregivers in your organization’s work.

• Document | Anglais

  Resource Guide: Patient and Community Engagement in the Design and Implementation of Research Studies

  Unity Health Toronto, 2022. A three-level Resource Guide tailored to any researcher who intends to start learning or expanding their knowledge of equitable patient and community engagement in the design and implementation of research studies.

• Page web | Anglais

  The Patient Experience Library

  The Patient Experience Library. A webpage which puts a wealth of patient experience evidence in one place with free search and unlimited downloads.

• Document | Anglais

  A Resource Toolkit for Engaging Patient and Families at the Planning Table

  Alberta Health Services, 2014. Find out more about the values and benefits of patient engagement and discover how patient engagement has improved health outcomes through this toolkit provided by Alberta Health Services.

• Document | Anglais

  Patient Partner Orientation Guides

  BRIC NS. A series of guides for patients and caregivers who are interested in becoming involved in healthcare research.

• Document | Français

  Cadre de référence de l'approche de partenariat entre les usagers, leurs proches et les acteurs en santé et en services sociaux

  Ministère de la Santé et des Services Sociaux, 2018. Un document qui vise à guider les usagers, les proches, les intervenants et les gestionnaires du ministère de la Santé et des Services sociaux (MSSS) et du réseau de la santé et des services sociaux (RSSS) en matière d’approche de partenariat et à préciser les balises au sein desquelles doit se définir et s’actualiser cette approche.

• Document | Anglais

  Doing Good Health Research in Northern Indigenous Communities: A Guide to Research Review

  Arctic Institute of Community-Based Research, 2015. A booklet intended to assist indigenous communities in ensuring that research is conducted ethically and according to community values.

• Document | Anglais

  Knowledge Translation for Indigenous Communities - Policy Making Toolkit

  The National collaborating Centre for Aboriginal Health, 2006. A toolkit to provide practical assistance to community policy makers and those who assist them (policy analysts, etc.) in development of Knowledge Translation (KT) policy. The specific focus is on health related knowledge translation.

• Document | Anglais

  Guidelines for Ethical Aboriginal Research

  Noojmowin Teg Health Access Centre, 2003. A resource manual for the development of ethical and culturally appropriate community-based research within the First Nations communities in the Manitoulin area.

• Document | Anglais

  For citizens partnering in research: Preparing to partner from our perspective

  Patients Canada (supported by OSSU), 2016. A reflexion on partnering in research from patients' perspective.

• Document | Anglais

  Partnering with citizens in research- What’s helpful from our perspective

  Patients Canada (supported by OSSU), 2016. Understanding the basics of partnership with citizens in research.

• Document | Anglais

  Patients as Partner in Research (Researcher Surveys)

  Patients Canada (supported by OSSU), 2016. To understand the actual experience of researchers when they partner with patients and caregivers on a project where the patients and/or caregivers are members of the research team. The questions are practical and look to identify behaviours that support productive partnerships.

• Document | Anglais

  Patients as Partner in Research (Patient/Caregiver Surveys)

  Patients Canada (supported by OSSU), 2016. To understand the actual experience of researchers when they partner with patients and caregivers on a project where the patients and/or caregivers are members of the research team. The questions are practical and look to identify behaviours that support productive partnerships.

• Document | Anglais

  SPOR Capacity Building Framework

  SPOR/SRAP, 2015. A guide for capacity-building activities of all SPOR partners, including CIHR, in the development of each partner's individual capacity development action plans.

• Document | Français

  Cadre de renforcement des capacités de la SRAP

  SPOR/SRAP, 2015. Le Cadre de renforcement des capacités de la SRAP a été conçu pour offrir une vision, des principes et des éléments communs aux partenaires de la SRAP afin d’orienter leurs activités de renforcement des capacités.

• Document | Français

  Cadre d'engagement des patients des IRSC

  SPOR/SRAP, 2014. Le Cadre d'engagement des patients de la SRAP vise à établir des concepts, des principes et des domaines clés pour que l'engagement des patients soit adopté par tous les partenaires de la SRAP.

• Document | Anglais

  Considerations when paying patient partners in research

  SPOR/SRAP, 2022. A webpage which contains considerations for researchers and research partners offering payment to patients who act as partners in research and research-related activities.

• Document | Français

  Points à considérer lorsqu’une rétribution est accordée à des patients partenaires en recherche

  SPOR/SRAP, 2022. Une page web qui contient des considérations pour les chercheurs et les partenaires de recherche qui offrent une rétribution aux patients qui agissent comme partenaires dans des activités de recherche/liées à la recherche.

• Document | Anglais

  CIHR Jargon Buster

  SPOR/SRAP, 2022. A glossary which provides lay language definitions for frequently used health research terms.

• Document | Français

  Explication du jargon des IRSC

  SPOR/SRAP, 2022. Un glossaire qui présente des définitions en langage clair et simple de termes fréquemment utilisés en recherche en santé.

• Document | Anglais

  Tips on Citizen Engagement for Evidence-Synthesis Teams

  SPOR Evidence Alliance, 2023. Insights from citizen partners who partnered with evidence-synthesis teams during the COVID-19 pandemic.

• Vidéos | Anglais

  SPOR Evidence Alliance Webinars

  SPOR Evidence Alliance. A collection of webinars on patient-oriented research and patient engagement.

• Document | Anglais

  Guidance on Engaging Patient and Public Partners in Research as a Researcher

  SPOR Evidence Alliance, 2021. A tool designed to provide guidance to researchers wishing to engage patients and members of the public in health research in a meaningful, non-tokenistic way.

• Document | Anglais

  Reflective Equity, Diversity and Inclusion Exercise

  SPOR Evidence Alliance, 2021. A tool designed to support exploration of the social advantages and/or disadvantages in an individual’s life, and learn how these intersecting social factors can impact a research project.

• Document | Anglais

  Conflicts of Interest Disclosure Policy

  SPOR Evidence Alliance, 2023. This policy is to outline the procedures in place to identify and manage any real, perceived or potential COIs. This policy describes the different types of COI disclosures, the protocol for reporting and managing significant COIs, and includes the COI disclosure form.

• Document | Anglais

  Patient Partner Appreciation Policy and Protocol

  SPOR Evidence Alliance, 2019. To provide information on the policies and procedures in place to show recognition and appreciation of patient partner contributions in the Alliance.

• Document | Anglais

  Tips for Research Conversations with Research Partners

  Chronic Pain Network, 2019. A list of tips to help guide researchers' and/or trainees' preparation for research conversations with CPN patient partners.

• Document | Anglais

  Roles for Patient Partners in Your Project

  Chronic Pain Network. A summary of patient engagement and what roles patient partners can have in a project.

• Document | Anglais

  Recommendations on Patient Engagement Compensation

  Chronic Pain Network. A tool containing recommendations on harmonizing an approach to Patient Partner Compensation across all SPOR Networks and SPOR SUPPORT Units.

• Vidéos | Anglais

  Patients as Partners in Research

  Diabetes Action Canada, 2021. A webinar which provides trainees with an opportunity to have their questions about how to incorporate POR in their research design.

• Document | Anglais

  Patient Engagement Infographic

  Diabetes Action Canada. A tool to understand how patient partners are involved in research.

• Document | Français

  À faire et à ne pas faire pour l'engagement des patients

  Diabetes Action Canada. Un document de conseils et bonnes pratiques pour les intervenants en recherche vis-à-vis les patients partenaires.

• Document | Anglais

  Patient Engagement Do’s and Dont’s

  A document providing patient engagement guidelines for researchers, patient partners and anyone new joining Diabetes Action Canada.

• Document | Français

  Politique de rémunération financière pour les patients partenaires

  Diabetes Action Canada. La recherche et les autres activités liées à la recherche financées par l’Action diabète Canada doivent refléter le temps et les contributions de tous les partenaires.

• Document | Anglais

  Financial Compensation Policy for Patient Partners

  Diabetes Action Canada. The Diabetes Action Canada Policy on Patient Partner compensation.

• Document | Anglais

  Patient Remuneration

  IMAGINE. Compensation rates from IMAGINE.

• Page web | Anglais

  How to Distil Key Messages from an Academic Publication and Communicate Using Plain Language

  Can-SOLVE CKD. A module dedicated to enhancing the understanding and importance of knowledge translation (KT).

• Page web | Anglais

  Patient Engagement Toolkit

  Can-SOLVE CKD, 2022. A toolkit which helps research teams communicate, identify common goals, and define roles for patients. The toolkit includes tips for collaboration in patient engagement, a glossary of terms, and practical tools to support the internal functioning of teams, such as a skills and contributions chart.

• Document | Anglais

  Knowledge Keepers in Research

  Can-SOLVE CKD. A resource to create a culturally safe space for researchers, patient partners and Knowledge Keepers to come together. It will encourage researchers to honor various forms of knowledge alongside Indigenous Knowledge Keepers and help them translate those teachings into practice.

• Vidéos | Anglais

  Indigenous Research Ethics and Protocols

  Can-SOLVE CKD, 2019. This webinar series aims to help researchers, team members, and patient partners acquire skills to respectfully engage Indigenous peoples and communities in health research in the spirit of reconciliation.

• Vidéos | Anglais

  Perspectives on Engaging Patients Through the Research Process

  Can-SOLVE CKD, 2018. A presentation to demystify the research process and to explain how researchers and patients are working together on research projects.

• Vidéos | Anglais

  Patient Engagement in Knowledge Translation

  Can-SOLVE CKD, 2021. A webinar concerning patient engagement and integrated knowledge translation (KT), the Can-SOLVE CKD experience with patient engagement and knowledge translation, and opportunities for pateint engagement in integrated knowledge translation.

• Vidéos | Anglais

  Equity, Diversity and Inclusion in Research: What You Need to Know

  Can-SOLVE CKD, 2022. In this webinar, you will learn how to incorporate equity, diversity and inclusion into your research.

• Balado | Anglais

  Partnered Primary Care Research Podcast

  Canadian Primary Care Research Network (CPCRN). A series of podcasts about and with patient partners (research for you, by you).

• Document | Anglais

  Tip Sheet on Engaging Youth in Research

  CHILD-BRIGHT. Tip Sheet on Engaging Youth in Research.

• Document | Français

  Fiche de conseils sur l’engagement des jeunes dans la recherche

  CHILD-BRIGHT. Fiche de conseils sur l’engagement des jeunes dans la recherche.

• Document | Anglais

  Patient-Partner Compensation Guidelines

  CHILD-BRIGHT, 2020. Childbright compensation guidelines.

• Document | Anglais

  Engaging Northern Youth

  TNW SPOR Support Unit, 2018. Key findings to help health researchers and others involved in the health system better connect with youth.

• Document | Anglais

  Patient Engagement Budget Builder

  Manitoba SPOR Support Unit. A template to help with the financial planning of patient engagement.

• Page web | Anglais

  Knowledge nudge - Patient Engagement in Practice

  Manitoba SPOR Support Unit. A series of short reads on patient engagement in practice and methods of patient engagement.

• Document | Anglais

  Methods of Patient and Public Engagement - A Guide

  Manitoba SPOR Support Unit, 2020. This guide will help explore options for participatory approaches and engagement methods at various stages of research, and various levels of patient and public partner involvement.

• Document | Anglais

  Integration of Sex and Gender in Health Reseach - A checklist

  SCPOR (Saskatchewan SPOR Unit), 2019. A checklist to help and support the integration of Sex and gender consideration in health research.

• Guide | Anglais

  The Indigenous Research Level of Engagement Tool (IRLET)

  SCPOR (Saskatchewan SPOR Unit). IRLET measures the degree to which a given project meets patient-oriented research criteria in the context of Indigenous communities.

• Guide | Anglais

  Patient-Oriented Research Level of Engagement Tool (PORLET)

  SCPOR (Saskatchewan SPOR Unit). PORLET was created with Patient Partners to provide a standard set of criteria for determining the level of Patient Partner engagement on POR teams.

• Page web | Anglais

  Patient-Oriented Research Project Planning Tool

  SCPOR (Saskatchewan SPOR Unit), 2019. To guide the discussion about how patients may be engaged in a research project.

• Document | Anglais

  Patient-Oriented Research— Project Planning Tool Summary

  SCPOR (Saskatchewan SPOR Unit), 2016. To guide the discussion about how patients may be engaged in a research project.

• Document | Français

  Meilleures pratiques pour l'engagement des patient.e.s en mode virtuel

  SCPOR (Saskatchewan SPOR Unit). Stratégies pour faire respecter les valeurs et les principes de la Recherche Axée sur le Patient tout en permettant aux patients partenaires de rester à la maison.

• Document | Anglais

  Best Practices for Virtual Patient Engagement

  SCPOR (Saskatchewan SPOR Unit). Strategies for research teams to uphold the values and principles set out in Patient-Oriented Research while patient partners stay home.

• Document | Anglais

  Onboarding Guide for New Patient-Oriented Research Teams

  SCPOR (Saskatchewan SPOR Unit). A list of things to consider when you start a patient-oriented research project.

• Document | Anglais

  Onboarding guide for Patient Partners new to a Patient-Oriented Research Team

  SCPOR (Saskatchewan SPOR Unit). A list of things to consider when you start engaging with a patient-oriented research project.

• Document | Anglais

  Patient Partner Honoraria

  SCPOR (Saskatchewan SPOR Unit). Honoraria rates from the SCPOR (Saskatchewan).

• Document | Anglais

  Patient Honoraria & Expenses

  SCPOR (Saskatchewan SPOR Unit). Honoraria and consultation rates from the SCPOR (Saskatchewan).

• Document | Anglais

  Patient Engagement In Research Scale - PEIRS

  BC SPOR Support Unit, 2018. Self-reported questionnaire on patient engagement in research.

• Document | Anglais

  Patient-Oriented Research Pathways Self-assessment Readiness Tool For Patients

  BC SPOR Support Unit, 2019. To support patients in uncovering competencies required to engage in patient-oriented research.

• Document | Anglais

  Patient-Oriented Research Pathways Self-assessment Readiness Tool For Researchers

  BC SPOR Support Unit, 2019. To support researchers in uncovering competencies required to engage in patient-oriented research.

• Document | Anglais

  Tips for being a patient partner on research teams

  BC SPOR Support Unit. To support patient partners engaging in research teams.

• Document | Anglais

  Evidence-Informed Practices and Strategies for Patient-Oriented Research (POR): A ‘Menu’ for Research Teams

  BC SPOR Support Unit, 2019. To support research teams considering or moving into Patient-Oriented Research (POR) by offering a ‘menu’ of evidence-informed practices and strategies for effective engagement.

• Vidéos | Anglais

  Who, me Yes, you! Becoming a Patient Partner in Health Research

  BC SPOR Support Unit, 2017. A webinar to learn how patients and the public can make meaningful contributions as partners in health research and how the BC SUPPORT Unit is striving to get patient engagement right.

• Page web | Anglais

  A Journey Through Public and Patient Engagement in health research : A Road Map

  BC SPOR Support Unit. An interactive “road map” that focuses on patient and public partners on a research team, outlining diverse activities that they could engage in across multiple phases of a health research project.

• Document | Anglais

  Guide - How Patient-Oriented is Your Research?

  BC SPOR Support Unit, 2019. To help identify the extent to which a proposed research project might be patient-oriented.

• Guide | Français

  Guide sur l'évaluation des partenariats en recherche participative organisationnelle (RPO)

  Unité de soutien SSA Québec. Cet outil peut servir aux différentes parties prenantes d’une recherche participative organisationnelle pour évaluer rapidement leur partenariat et utiliser les résultats pour améliorer continuellement ce partenariat.

• Guide | Anglais

  Organizational Participatory Research Practice Guide

  Unité de soutien SSA Québec, 2018. A practice guide addresses aspects of participatory research that are unique to Organizational Participatory Research (OPR).

• Guide | Français

  Guide pratique – Stratégie de partenariat avec les patients et le public en recherche

  Unité de soutien SSA Québec, 2018. Survol des différents éléments clés du partenariat avec les patients et le public en recherche. Le guide navigue de questions en questions relativement au pourquoi, avec qui, quand, à quels moments et comment mettre en place une stratégie de partenariat avec les patients et le public de sorte à ce que le lecteur puisse accéder rapidement aux sections d’intérêt.

• Document | Français

  « Ça vous va, si on réutilise vos données de santé? »: une bande dessinée éclairante sur le partage de vos données de santé

  Unité de soutien SSA Québec, 2022. Cette bande dessinée permet à la population de comprendre pourquoi les équipes de recherche et le personnel médical souhaitent avoir accès aux données de santé. Elle explique également comment l’équipe de CLARET propose de rendre possible le consentement des gens au partage de leurs données dans un contexte sécuritaire, transparent, acceptable et accessible.

• Page web | Français et Anglais

  ENGAGE: Des méthodes participatives et des outils visuels et auditifs pour engager les populations vulnérables en recherche

  Unité de soutien SSA Québec, 2020. Comment impliquer les personnes vulnérables ou ayant un faible niveau de littératie en recherche en santé? Comment réduire les barrières entre la recherche universitaire et les membres de la communauté? Coconstruit par des organismes communautaires et les communautés de recherche canadienne et internationale, le site web bilingue ENGAGE propose des méthodes participatives et des outils visuels et auditifs.

• Document | Anglais

  Terms of Reference (ToR) Template

  ABSPORU - Alberta SPOR Support Unit, 2018. To assist research teams and other groups in the co-development of terms of reference with their knowledge users and in particular their patient / public members.

• Guide | Français et Anglais

  Fairness is Excellence: The Ontario SPOR SUPPORT Unit’s Equity Framework

  OSSU - Ontario SPOR support Unit. A framework that explains principles and practices for promoting equity in patient-oriented research, and the equity-related requirements for researchers working with the Ontario SPOR SUPPORT Unit (OSSU).

• Document | Anglais

  Patient Engagement and Canada’s SPOR Initiative: A Resource Guide for Research Teams and Networks

  OSSU - Ontario SPOR support Unit, 2015. A guide prepared with the objective of supporting researchers, decision makers and other relevant stakeholders involved in a wide range of SPOR-related activities.

• Guide | Anglais

  Partnering principles and strategies: A guidance document for researchers, patients, and caregivers

  OSSU - Ontario SPOR support Unit, 2020. To plan for and involve patient, caregiver, and public research partners in activities and projects.

• Document | Français

  Livre blanc sur le partenariat avec les patientes, les patients et le public

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2022. Ce livre blanc permet à chaque milieu de déployer le partenariat avec les patientes et les patients en fonction de ses particularités et de son historique. Il propose une structure minimale et guide les milieux pour qu’ils s’approprient son opérationnalisation stratégique, tactique et opérationnelle au quotidien.

• Document | Français

  Principes directeurs – Dédommagement financier pour la recherche en partenariat avec les patients et le public

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2018. Principes directeurs pour le dédommagement financier pour la recherche en partenariat avec les patients et le public - Unité de soutien SRAP du Québec et CEPPP.

• Document | Français

  Mandat pour l’implication de patients partenaires et/ou membres du public en recherche

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2018. Permettre à l’équipe de recherche de structurer un mandat clair pour l’implication de patients partenaires ou membres du public dans leur projet de recherche.

• Page web | Français et Anglais

  Boîte à outils d’évaluation de l’engagement des patients et du public

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP). La Boîte à outils d’évaluation est un registre destiné aux divers acteurs du secteur de la santé, conçue à la suite d’une revue systématique rigoureuse des outils d’évaluation de l’engagement du patient et du public.

• Document | Français

  Terminologie de la pratique collaborative et du partenariat patient en santé et services sociaux

  Centre d'excellence sur le partenariat avec les patients et le public (CEPPP), 2016. Ce document présente les définitions des principaux concepts fondateurs du partenariat patient en santé et services sociaux.

• Guide | Anglais

  Patient and Public Engagement Planning Template

  NL SPOR Support Unit, 2016. Template designed to assist with the development of Patient Engagement plans for health research but can be used to plan other projects,

• Guide | Anglais

  Patient Partner Appreciation - NL SUPPORT and Quality of Care NL Guidelines

  NL SPOR Support Unit, 2021. Guide to Patient Partner Appreciation - NL SUPPORT and Quality of Care NL Guidelines.

• Guide | Anglais

  Patient Engagement and Research Ethics Guidelines

  NL SPOR Support Unit, 2021. Guidelines developed by the Newfoundland and Labrador Health Research Ethics Authority.

• Vidéos | Anglais

  How to access Data and Public Engagement in Health Data Research with HDRN Canada

  NL SPOR Support Unit, 2023. This webinar presents HDRN Canada’s Data Access Support Hub (DASH) and how public engagement has been shaping the work of Health Data Research Network Canada.

• Vidéos | Anglais

  Ethics and Patient Engagement: An Online Panel Discussion

  NL SPOR Support Unit, 2022. This webinar will explore ethical issues related to patient engagement in research.

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